“What Should We Talk About”- Houston Part 1

 

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It was the End of July, three weeks after Julie came home from the hospital, we were on a drive to SLC Utah, Julie turned to me and asked, “What should we talk about?”  It was a surprise because she had said little since coming home.  We talked together much of the trip, which was a big turning point in a slow recovery after her hospital stay.  Since then she has been more alert and moving more, able to walk much better than when she first came home.  She still uses the wheel chair for longer outings, like the airport or mall, but she moves about the house without help.  She is still very weak, and takes pain and nausea medication every day, and she has her intraspinal pain pump turned up much higher.  Yet, we are enjoying simple and beautiful things, making efforts to get out, even if it for an evening sunset drive and a stop at Baskin Robins.

Every day there is so much to take in, so many of God’s creations and blessings all about us.  Every day there are pains, tears and fears.  We are both getting better at being happy.  Here are the happy points:

  1.  Trips into nature, mountains, lakes, fresh air.

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Canoeing String Lake in August

2.  Being together with family, getting to be a mother.

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Seeing a Total Solar Eclipse in August
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Helping Christopher make his 12 year old Birthday Cake
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Going to Back to School Night with her “little boys”
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Dropping off Heidi at college

3.  Being Mother of The Groom.  Kendall Hatch and Hannah Murray were married for eternity on 12 Aug 2017.  This is something she was fighting for.

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She is still fighting for so much.  She wants so much to live.  We have been having very frank discussions.  I have promise her that when she dies, she will be happy, she will miss us and we will miss her and that will always make us very sad.  But she will be happier in many ways.  That is what we want to believe, that is what we choose to believe, that is what we have to believe.  That is what our faith in Christ is for.  Still she is not giving up, but we have been facing death with less despair.

In July, Julie had an octeotide scan which showed she has the octreotide receptors on her tumors.  In the image below, the tumors that have the receptors show up in black.  The bladder and kidneys also show up black.  As you can see there is extensive disease in her liver and throughout much of her skeleton.  You can also see the tumors in her chest, skull and pelvis.

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We are now in Houston for the whole week, having several tests done, and tomorrow she will be infused with Lutathera, Lutetium-177-dotatate.  This is the PRRT treatment that will take radio active Lutetium 177, bound to octreotide, and find the octeotide receptors on the cancer cells, bind to them, and emit beta radiation to destroy the tumors.  Here is the link for more info:  PRRT info

Julie is enjoying her time in Houston.  The warm and humid air feels good to her, she loves the mossy, huge live oak trees hanging over the roads, she enjoyed the butterfly and natural science museum, and she liked the King Crab legs she had for two dinners (restaurant and leftover).

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We are talking about the future and eternity.  We are not going to plan on some hypothetical future.  We are trying to look to the future as if nothing changes from this day, and plan as if every day is going to be as good or as bad as the present day.  We want to work for and hope for good days, but live today and every day with optimism, and let the waves of emotion and sadness overwhelm us, and then recede, and make us feel grateful for every moment together.   Does any of that make sense?  Maybe just to me.

5 thoughts on ““What Should We Talk About”- Houston Part 1

  1. Bless you all! What a wonderful legacy of love and courage you are creating. Thank you for sharing your journey.

    Your family means the world’s to me. You will never know what a positive influence you have had on me and especially my son. He needed so much an example of a loving, cohesive family, and more particularly, a loving enduring couple with a devoted husband and father. Thank you for giving him what I could not. We love you very much.

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  2. Thank you for this post Brad. We appreciate the love in your words, the love in your actions, and the faith in your heart. We pray for you both continually and love and support you and Julie. Please hug her for us. Tell her we love her. We love you too.

    Liked by 1 person

    1. Just so you know. I’ve read and reread this post several times that past few days, almost everyday. I love seeing Julie and you together and the pictures of your wonderful family. You are wonderful together and a great example to us all. Love you so much!

      Liked by 2 people

  3. I don’t know why I cry when I read your posts. I suppose they are tears of happiness and being grateful. The treatments sound promising and give me hope for you Julie.

    The lake looked so clear and clean, but I know it must be freezing since there is snow in the mountains. I’m glad you can get out and enjoy the beautiful parts of this world. We love you.

    Liked by 2 people

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